Break the Bias: How Global Science Is Shifting the Narrative on Eating Disorders

Each year on World Eating Disorders Action Day, we unite across continents to shatter myths, amplify lived experiences, and demand better for those affected by eating disorders. The theme for 2025—Break the Bias: Support Families—resonates deeply with those of us who have seen firsthand how stigma and misunderstanding compound the suffering of individuals and their loved ones.

One of the most enduring and damaging biases about eating disorders is the idea that they are a choice—deciding not to eat, or choosing to eat too much. This simplistic and harmful narrative overlooks decades of scientific research and silences the experiences of countless individuals and families who know that the truth is far more complex.

Science is catching up—and speaking out.

At the Eating Disorders Genetics Initiative 2 (EDGI2), we’re part of a global research movement working to uncover the biological and environmental roots of eating disorders. Our research spans anorexia nervosa, bulimia nervosa, binge-eating disorder, and avoidant/restrictive food intake disorder (ARFID). Through large-scale studies that include tens of thousands of participants worldwide, we are mapping how genes and environment interact to shape risk, clinical course, and recovery.

And the results are breaking barriers.

We now have clear evidence that eating disorders are not a lifestyle choice or a failure of willpower. Rather, they are serious, biologically influenced illnesses—just like other complex psychiatric and general medical conditions. This perspective shifts blame away from individuals and families and toward solutions rooted in understanding, compassion, and science.

Perhaps most striking is how often our findings resonate with families. Parents and caregivers frequently tell us that our genetic and environmental research affirms what they’ve long sensed: that their child’s eating disorder is not simply willful, but the manifestation of a powerful—and often terrifying—biological and psychological force. For many, this knowledge brings relief, clarity, and a renewed sense of purpose: to support their loved one with less shame and more science.

We need your help to keep breaking the bias.

If you’ve ever experienced an eating disorder—at any point in your life—you can make a difference by participating in EDGI2. Whether you live in the United States or Puerto Rico (edgi2.org), Australia (edgi2.org.au), New Zealand (edgi.nz), Sweden (edgi.se), or Mexico (instagram.com/edgimexico or comenzardenuevo.org). Your story, your DNA, and your voice can move us closer to treatments and understanding that reflect the full complexity of these  illnesses.

On this World Eating Disorders Action Day, let’s do more than raise awareness—let’s change the science, the stigma, and the future.

Join us. Break the bias. Support families. Participate in EDGI2.