Each year on World Eating Disorders Action Day, we unite across continents to shatter myths, amplify lived experiences, and demand better for those affected by eating disorders. The theme for 2025—Break the Bias: Support Families—resonates deeply with those of us who have seen firsthand how stigma and misunderstanding compound the suffering of individuals and their…

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June 2nd 2025 is World Eating Disorders Action Day and this year’s theme is Break the Bias and Support Families (https://www.worldeatingdisordersday.org/). The EDGI2 team is a collaboration across the US, Mexico, Denmark, New Zealand, Australia, and Sweden, using eating disorder genetics research to get on board with this global effort! You can read more about…

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Avoidant/restrictive food intake disorder (ARFID) is found at higher rates in certain clinical populations and within certain neurotypes. Increasingly, researchers and clinicians are considering the question of whether certain strict eating behaviours are a patient’s necessary responses to manage a medical condition-such as a food allergy or gastrointestinal issues-or whether these eating behaviours have strayed…

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ARFID Characteristics During Hospital Treatment ARFID stands for Avoidant/Restrictive Food Intake Disorder. ARFID is an eating disorder where someone avoids food, but not due to concerns about weight or body shape. Unlike anorexia nervosa, where people’s disordered eating focuses on appearance and weight loss, ARFID food issues are often caused by things like lack of…

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EDGI2 (Eating Disorders Genetics Initiative 2) logo featuring a DNA strand with a globe, alongside text announcing new updates in eating disorders genetics research.

EDGI1 vs. EDGI2: What’s New in the Next Wave of Our Eating Disorders Study? Our Eating Disorders Genetics Initiative (EDGI) study has entered its next phase! Building on the success of EDGI1, which saw 3,500 New Zealanders participate, EDGI2 is expanding our understanding of eating disorders even further by allowing us to bring in an…

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Copy number variants (CNVs) are changes in DNA where sections are either repeated (duplication) or absent (deletion). These genetic differences can affect how genes work, with larger CNVs potentially causing bigger effects. Rare CNVs might be more important for rarer disorders-like anorexia nervosa-than common CNVs. Anorexia nervosa is a complex psychiatric disorder. Earlier research showed…

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As December 2024 arrives, we thought it was a good time to reflect on the year. Here’s an update on our activities over 2024. EDGI Progress: Recruitment Milestones The above images provide insights into the progress we have made in Aotearoa New Zealand & internationally. By March of 2024, the following were achieved: 5,006 participants…

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Though often in the news, eating disorders are poorly understood. When thinking about eating disorders, people usually think of anorexia nervosa or sometimes bulimia nervosa, but rarely about the most prevalent – binge eating disorder (BED). People affected by BED regularly eat large amounts of food while feeling unable to control their eating. These binges…

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In May 2023, our Professor Martin Kennedy presented an 8 minute talk on using genetics to understand eating disorders. This talk was inspired by our work with EDGI and prior research. Martin explains that eating disorders are damaging, very poorly understood, and difficult to treat. They can also be strongly driven by genetics. He discusses…

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